#chronicillness #congestiveheartfailure #chiarimalformation #spinalstenosis #sjogrenssyndrome #sjogrens #pulmonaryhypertension #congenitalheartdisease #congenitalheartdefect #anemia #chronicpain #chronicpainwarrior #pulmonaryedema #osteoporosis #copd #spinabifida #brittlebones #cluster #clustermigraine #etc
I always look back on my teens when I devoured anything deep fried or sugar and I kinda think I’m lucky to just have one diagnosis🥴🤯 Feeling grateful today that my ulcerative colitis has made me listen to my body and made me appreciate every part of it. I’m sorry for abusing you for so long💓 . . . #toomuchsugar #listentoyourbody #bekindtoyourself #healyourself #eatyourveggies #vegan #vegetarianrecipes #selflove #ibd #ibdmoms #ulcerativecolitisfighter #ibdmumma #ulcerativecolitisdiet #ulcerativecolitis #chronicillness #autoimmunedisease #toomuch #pasta #lookahead #redhead #whatdoesntkillyoumakesyoustronger #imsorry #selflove #motherhood #postpartumbody #stradbrokeisland #australia
Today has been a heavy pain day. Stabbing chest pains coupled with a constant tight band around my chest. I keep getting lightheaded, my vision is blurry and I'm super drowsy. I didn't manage to escape the missed dose of Topiramate entirely unscathed. Last night I was sat on the sofa. I'd spent ages putting together images and typing up a post when my vision went all jumpy and weird. And then I "came back" in a different position on the sofa about 15 minutes later. The post was completely lost. I'd moved the apps around on my phone. Typed some shit into a message - literally meaningless jumbles of letters where my fingers had pressed keys. I'd obviously had one of my worst kind of focal seizures. I made it to bed in case I had another one and had a very restless night. Today has been spent mostly on the sofa watching Space Force on Netflix with my dad. And falling asleep without warning (including on the toilet 😂 ). Hopefully I can get some decent sleep tonight! #chronicmigraine #migraine #migraineur #invisibleillness #seizuredisorder #seizures #epilepsy #focalseizures #epilepsyproblems #chronicillness #topiramate #topamax #asthma #asthmaproblems #covid #covid_19 #coronavirus #recovery #pulmonaryembolism #bloodclot #pneumonia
When the whole world is going crazy, a day on the trails is good for the soul. #quarantinelife #tranquility #atpeace #hikingadventures #alltrails #hikingfamily #timeaway #familytime #familyiseverything #paleolifestyle #rheumatoidarthritiswarrior #chronicillness #autoimmunewellness #getmoving
I have come a long way in 3 years. This is me in 2017, wading through the water on a little island in Thailand. I still had chronic migraine, but it wasn’t as bad as it would get in 2019. At the peak of things in 2019 I had migraine attacks 25 days a month, and had symptoms every single day. This year, I’ve taken a leap - I have reduced my hours at work to better look after my health. I am on new medication after a break. I am committed to slowing down and doing the things I have found that make a difference. ...and I’ve been feeling better. Not 100% better, not 50% better but enough to give me more hope for a future that involves more smiling in crystal blue waters. Zoe @activelyautoimmune posted today about her improved function and it really inspired me to look at how far I’ve come. This journey has taught me so much, it has been hard and would never wish it for anyone but it’s a part of my story, and has been such a catalyst for growth. I truly hope that each and everyone of you feels that you’ve made some progress in your life recently, whether physically or mentally. And if you feel that you haven’t, that’s okay too. I hope that you feel hopeful for the future, even if things seem dark right now. #chronicillness #chronicmigraine #spoonie #migraineaustralia #migraineawareness #migraineawarenessmonth
It's been hard to chew lately due to my TM joint inflammation and disastrously erupting wisdom teeth... so I decided I would figure out a green smoothie recipe I actually LIKE! If I can't eat my vegetables, maybe I can drink them, right? But every green smoothie I've tried before has been bitter, chalky, or otherwise unpleasant. --- THIS smoothie, though, is genuinely delicious and refreshing and satisfying. My parents have both started drinking it, too. --- To make it, use one part greens (kale and spinach, maybe a celery stalk ) and one part fruit (mango, peach, apricot, and/or banana ). Add enough pure apple juice (or watered down apple juice for a less sweet taste ) to make a nice, smooth, liquid texture. If you'd like, add some fresh lemon juice and/or a drizzle of honey. And blend! It might take longer to blend because kale is pretty tough, but give it a minute or two. --- Just to be clear... I am NOT making any claims about this smoothie having medicinal properties of any kind. IT'S JUST A SMOOTHIE. It tastes good and has dark green veggies in it, which is nice, but it's not any kind of miracle. If you like it, cool. If it's not for you, cool. I'm not one of these juice/smoothie/kale fanatics trying to convince everyone I've found the ultimate panacea. 😏 --- --- --- #smoothie #greensmoothie #recipe #kale #spinach #food #peach #mango #banana #vegetables #fruit #lemon #honey #applejuice #yum #nutrition #chronicillness #ehlersdanlossyndrome #tmj #wisdomteeth #eds #pots #dysautonomia #endometriosis #chronicpain
Today is May 31st. The last day of Vasculitis Awareness Month #VAM2020 These photos take you through just a little of my vasculitis journey. The first photos taken in January of 2019 were of a spot that I thought was a bruise that I first noticed in Oct of 2018. The end of January I was having trouble walking because everything just hurt so very, very much. I mean EVERYTHING. Even just sitting still caused me to ache. By May 2019 this little red spot had spread to over 85-90% of my body. Only places I did not have a spot were my feet. I was treated for lyme, eczema, psoriatic arthritis, psoriasis, lupus, etc.... I was given antibiotics and antivirals. I gave blood (so much blood ) and urine and xrays weekly. I had biopsies. I had cat scans. I had seen nearly every Dr and PA in the office, I went to an ENT because I kept having sinus infections & nose bleeds, I was referred to an Infectious Disease doctor. Gave more blood for more tests. I saw a Gastroenterologist for stomach and digestive problems. I started to see a Plumologist because my adult onset asthma was getting severe and hard to manage. I was sent to a Dermatologist and she was the one that looked at me with the "Oh Shit" look. By now I had become so familiar seeing that look. Everyone came to attention and was far more attentive in listening to my loooong and growing list of complaints once I started to roll up my sleeves, push up my pant legs, raise my shirt, wipe off makeup... That look of "Oh Shit" was the sign I knew they had no idea what to do next. What was different in my dermatologist's "Oh shit" look was that she thought she recognized it from her studies in college. She took another biopsy right then and there and worked hard to push my rheumatology referral to the top of the urgent list. So much pain. Within the week I finally got into my rheumatologist. They already had a suspected diagnosis, but needed just a few more tests to get the right name. That meant more blood. 7 vials. 3 stayed in Peoria, 4 went to Mayo. 48 hours I finally had my diagnosis. #EGPA #ChurgStrauss #Rare #NoCure #SpoonieLife #ChronicIllness #LoveALLMyDoctors #IAmAWarrior
Raising awareness of this awful illness. . . . . #endometriosis #endometriosisawareness #1in10 #endodiet #chronicfatiguesyndrome #endo #endowarrior #endopeople #endosistersunite #endosucks #womanshealth #girl #health #endogirl #womenwithendometrisis #endowarrior #endobabe #endosisters #chronicillness #chronicillnesswarrior #endometriosisawareness #chronicillnesawareness #chonicpain #chonicpainwarrior #fertilityjourney #adenomyiosis #adenomyiosissupport #womensupportingwomen
🌿𝚃𝚑𝚎 𝙶𝚛𝚎𝚎𝚗 𝙶𝚘𝚍𝚍𝚎𝚜𝚜 𝚁𝚒𝚜𝚎𝚜🌿 #cannabis #weed #girlswhogrow #girlswhogrowweed #weedwitch #growweed #plantmedicine #girlswhosmokeweed #organicgardening #autoflowers #dank #cbd #growmarijuana #indoorgrow #outdoorgrow #cannabiscommunity #chronicillness #pothead #greengoodness #gogreen #womenincannabis #weedporn #fatbuds #terps #girlswhosmoke #medicated #motherearth #greengoddess #weedwomen
@malie_catt8 ⠀⠀ After constantly being told it’s psychological by Doctors. I thought is my pain really all in my head? Why me? Why was I different? Had my brain created physical pain? How on earth do I stop my brain? When everyone seems to be functioning fine and I’m in the doctors every week complaining of this and that, it must look like I do it for fun. But trust me it’s not fun. It was the hardest days of my life. I never struggled with mental health until I was told my pain wasn’t real. I felt so alone and I blamed myself for how I felt. I am going to the doctors because something is wrong. I am going because I want help. I am here because I am desperate. ⠀⠀ I started to get bad anxiety surrounding doctors appointments and I’d have panic attacks. I was frightened that they would stick more needles in me again or think I was faking it. No matter what I went in for I was alway dismissed and sent away. I forced myself to the doctors for answers. Why are you here? Oh the dreaded question again. Do I say the truth and say that I suspected POTS or do I list a 100 symptoms and let them do their job (in case they think I’ve been googling again and I’m a hypochondriac. ) I went for the second one to be safe. But I was right it was POTS and I wouldn’t be dismissed this time. Finally, I had a diagnosis. I felt silly being so anxious over being believed and doing my own research. But that’s what years of negative tests, disapproving looks and sarcastic comments do to you. I had fainted for years and All I was told was to eat more salt. No one asked why or tried to figure out what caused me to faint daily. ⠀⠀ One comment I had was you’d feel better if you had a boyfriend. Yes a professional told me that. In what world would that make me better? My whole journey has been a trial and error of 10 years. With diagnosis and misdiagnosis. I’m now getting the help I’ve always needed. Nothing about me has physically changed but my perspective has changed. Since finding this community, I have been the happiest I’ve ever been in my life. (Continued in the comments )
Another little art project during lockdown. Old camera box painted for my little sister : ). My hands were bad so struggled doing this because it was about details. (Shaky hands ) but got there eventually. #isolationart #upcycling #painting #ouijaboard #ouijaplanchette #saw #IT #jigsawbillythepuppet #elephant #silhouetteart #chronicillness #chronicillnesswarrior #autoimmunedisease @kellybuchanan18
@cupofteaplusme ⠀⠀ It started with a sore throat in Summer 2018. You don’t go to the doctors with a sore throat so two days after it started I flew off to Switzerland to take 50 Scouts away for a week. My sore throat got progressively worse & by the 3rd day of the trip I couldn’t speak. ⠀⠀ When I got home I went to the doctors to be told I’d most likely had tonsillitis & now had laryngitis. I was exhausted, my body temperature was all over the place & I was in pain all over, but I tried to continue with life as normal. ⠀⠀ 3 months later I completely crashed & couldn’t even manage to go to work. The doctors diagnosed me with Post Viral Fatigue Syndrome (PVFS ) & told me to rest for 4 weeks. ⠀⠀ By the end of the 4 weeks I felt a bit better but was still struggling. As there was nothing apparently wrong with me with all the blood tests being normal, I went back to work & then flew out to Lisbon in January to start work out there. ⠀⠀ I’d been there 3 weeks when I got this horrible pain in my chest & ended up in hospital, diagnosed with Costocondritis. It completely wiped out the little energy I had & I ended up being sent back to the UK. ⠀⠀ Back to the doctors I went, who sent me to another doctor, who referred me to a specialist. All sent me for lots of blood tests which all came back normal. In March 2019 I was finally diagnosed with ME. ⠀⠀ Since my diagnosis learning to manage my illness, with limited support from the medical profession has been a huge challenge. But it’s thanks to this community on Instagram that I’ve got where I am today and I no longer feel alone with my illness. ⠀
It’s been 2 weeks since I got out of the hospital. It also happens to be the last day of #ehlersdanlosawarenessmonth . 3 weeks ago I ended up in an extremely scary position. Unable to breathe, ripping burning chest pain, cold sweats, clammy all over, migraine, unable to eat, ragging widespread pain, visual disturbances, high heart rate and blood pressure and awake for a total of 69 hours. As I’m sure most of you know, living with EDS often comes with a constant struggle of not knowing when is the appropriate time to go to the ER. While I tried to wait it out and get through the week, by the weekend my partner and I had to call 911 for an ambulance, due to my symptoms becoming increasingly worse. My hospital stay was very traumatic with the threat of covid19, but also because of the concerns surrounding my state. I was tested to rule out a heart attack, blood clot and even aortic dissection. All alone, having to wait 4 hours for a ct scan of my heart was absolutely terrifying. I can’t remember a time I’ve been so silent and still. Out of complete fear I couldn’t contact loved ones or process what I could potentially be up against. After my ct scan was complete, I was given some fluids and had to wait an additional few hours for my results. Luckily everything seemed to be alright and my body was just going through some kind of weirdness. However, during my ct scan they did find something, a nodule on my thyroid. The doctor told me to follow up ASAP and that I would need a biopsy. Since my two week quarantine has ended, I now have this new information weighing on me. I know growths on the thyroid can be common and are often benign, however I recently saw a post on one of my support groups regarding a staggering number of people with EDS who have also developed thyroid cancer. Tomorrow I have a phone appointment with my gp to see what the plan is. Fingers crossed. I’m super bummed to have not been able to finish my #edschallenge , but I feel like this just goes to show how incredibly unpredictable and scary life can be as a zebra. To finish this story on a happier note, we did however make it up to my favourite spot to quarantine, as picture above ♥️
The anxiety is real. The heartbreak is real. The pain is real. The struggle is immeasurable. But thanks to incredible friends, I reached a level of strength I didn't know existed. In particular a specific quote from a particular friend REALLY hit me. And it helped me. Sometimes you just need to hear something you didn't know you needed. 💪🏽🖤 . . . #chronicillness #chronicpain #thestruggle #thepain #anxiety #obstacles #icandothis #beunstoppable #icandohardthings #princessleia #carriefisher #thankyouB #scoliosis #scoliosisscar #runnerfriendsmakethebestfriends #imamachine #starwars #youallbelieveinme #imsograteful
@alathiahayes .author ⠀⠀ "I was diagnosed with fibromyalgia 2019, but the road to get to this diagnosis was a long and exhausting one that started in 2016. First, I was misdiagnosed with lupus. Next, my rheumatologist settled on the diagnosis on Amplified Muskuloskeletal Pain Syndrome instead. And while that diagnosis did explain some of my symptoms, I never felt like it really fit what I was experiencing. My rheumatologist had no advice for me but to exercise and go to therapy, which didn’t work. So, I decided to dig deeper into my diagnosis and start the process all over again. I found a new pain clinic, general med doctor, and psychologist to help really get to the bottom of things. Taking all my symptoms into account, my new general med doctor settled on my fibromyalgia diagnosis. I will forever be grateful that I eventually found doctors who listened to me. ⠀⠀ (Cont. ) "Now I am finally at peace with my diagnosis. Life with fibromyalgia is hard and some days are miserable. However, chiropractic care, massage therapy, consuming alkaline foods, gentle workouts, and regular talk therapy helped me get my life back."
2004 - I got my period first when I was 10. I have always experienced pain while on my period, and had to miss school when I had it. 2006 - I saw my GP when I was 12 and he told me it was just normal pain, gave me some pain killers. 2007 - I went back to my GP and this time he decided to put me on the pill to manage the pain. As I got older, I tried different pills and pain killers. My GP always told me it was normal period pain. I stopped looking for help because I kept being told it was normal. June 2019 - I had my smear and my new GP referred me to see a gynae after discussing all the problems I’ve had. Aug 2019 - My gynae instantly booked an ultrasound and a laparoscopy. I had my ultrasound and the radiographer said there are multiple follicles on my ovaries and he guessed I had PCOS rather than endo. Oct 2019 - I had my lap and was told I’d see my gynae in 6-8 weeks. I had the mirena inserted while in surgery. One week later I was referred to A&E as I was in severe pain.. I had a CT scan and was told I had multiple endometriomas on both ovaries. The doctor in A&E said I’d have another scan to see if I needed surgery. My gynae was called and he told me there was nothing wrong with me, I didn’t have endo and I was just in pain due to the coil. Nov 2019 - I ended up back in A&E due to severe pain, and had an ultrasound. It confirmed that I have multiple endometriomas on my ovaries, and that it was a definite sign I have endo. I told her my gynae said I didn’t, and she insisted that she and 2 other docs said I did. I was told the only treatment is pain management, prescribed tramadol and discharged. March 2020 - I previously only had symptoms when I ovulated and when I had my period. Suddenly this changed and I was in pain every couple of days. April 2020 - pain was becoming more frequent and more severe. I called my GP and she said she was making an emergency gynaecology referral for me. May 2020 - I ended up in A&E due to pain. I was discharged with a stronger prescription and referred to a new gynae. I got a letter to say I’d be seen in 56 weeks.I found a private gynae and made an appointment, I see him in two days and hopefully I’ll get some answers.
#Repost from @millennial .therapist Over the past couple days I have spent my time following current events closely, listening to black people and other minorities speak, and having difficult conversations with people in my life around privilege and prejudice. It’s hard. It’s scary. It can even be lonely. But, as a white person, it is a chosen and temporary discomfort. It’s nothing compared to black peoples’ fear for their lives or their family member’s lives at the hands of someone who is supposed to protect all of us. It is nothing compared to the inter-generational trauma black people will continue to work through for generations to come. I hear the pain you’re sharing with us all. I hope it is not in vain. I know it is important as a white person with privilege to use the privilege I have to speak up, it seems especially suiting to be on the day of rest as @thenapministry suggested that white people show up so that black people can get some rest while living with oppression and advocating for their innate humanness. What can you do if you’re white? Educate yourself. Listen. Speak up. Show up. Leverage your privilege to make a difference by protesting, supporting the black people in your life, donating to a freedom fund or other fund that can help the black community advocate and heal, or by having those hard conversations with people who have privilege around you. If you feel like you’re spinning your wheels, good! Harness that feeling and turn it in to compassion by acknowledging and imagining how often black people and minorities must feel that way. Then continue educating yourself. It is not the responsibility of black people to educate you on the oppression they’ve experienced, so when they talk listen up and appreciate the vulnerability and energy that they are sharing their experiences with us! For the next week, I intend to be silent. I encourage you to follow black therapists and activists if you don’t already. This is a time for white people to listen and show up to do the work. I continue to be at a loss of words for the black people reading. I want you to know you are not alone. You are seen. You are heard. You are cared for. This is not right.
Slightly obsessed with my shirt from @teespoonies 😍 And if you’re not following my @brave_girl_healing account, you prob should be 🤷🏻♀️💕 . . . . #mentalhealth #physicalhealth #health #chronic #chronicillness #ibd #colitis #ulcerativecolitis #crohns #anorexia #gastroparesis #depression #anxiety #trauma #recovery #ibs #spoonie #letstalkibd #invisibleillness #glutenfree #dairyfree #foodallergies #surgery #healthateverysize #eatingdisorder #recovery #edrecovery #anxiety
this post is for my fellow white, chronically ill/disabled folx. we can still take action! give your time, energy, and funds (if you are able; even five dollars can help ). do not be silent and complacent. BLACK LIVES MATTER and if you disagree, please exit my life. solidarity to all those on the front lines. 🔥 . . . #chronicallyill #chronicillness #blm #portland #pdx #reparations
Just a quick check-In. How’s everyone feeling right now? #support #yoga #mindset #suicideprevention #stress #art #trauma #mentalwellness #healthylifestyle #bipolar #awareness #community #goals #endthestigma #family #mentalhealthadvocate #mentalhealthsupport #counseling #therapist #happy #chronicillness #peace #instagood #hope #mentalhealthrecovery #lifestyle #anxietyrelief #lifecoach #gratitude #repost
PILLAR 6 - CONNECTION 2020 has been a year where each and every person has learnt the importance of connection with one another. We have taken to social media, video conferencing, writing letters and phoning one another, like never before. We have learned the true meaning of friendship, support and loneliness ... Join us in June as we delve into why connection means so much and the benefits it has on health and wellbeing. #connection #socialisolation #wellbeing #health #together #weareallinthistogether #united #chronicillness #chronicpain #support #npc12pillarsofwellbeingformanagingpain
PILLAR 5 - GUT HEALTH Last month we have delved into the word of our gut. Questions we have answered include: - Why is it so hard to change my diet? - Why do I crave carbohydrates? - Why am I so hungry after a bad night's sleep? - Why does diet and exercise matter when it comes to my gut? - Does my gut microbiome affect my chronic pain? - Does my stress levels affect my gut health and pain? - How do I improve my gut health? To learn more about Gut Health & Pain: 1. https://www.northernpaincentre.com.au/wellness/12-quick-tips-for-improving-gut-health/ 2. https://www.northernpaincentre.com.au/wellness/gut-health-and-pain-part-1-know-your-gut/ 3. https://www.northernpaincentre.com.au/wellness/gut-health-and-pain-part-2-the-gut-brain-connection/ 4. https://www.northernpaincentre.com.au/wellness/gut-health-and-pain-part-3-your-gut-and-stress/ 5. https://www.northernpaincentre.com.au/wellness/gut-health-and-pain-part-4-changing-your-gut-health/ #guthealth #gutbrainaxis #gut #digestion #chronicpain #pain #chronicillness #NPC12pillarsofwelbbeingformanagingpain #digestion #microbiome #dysbiosis #HPAaxis #entericnervoussystem #secondbrain #inflammation
Meet the incredibly talented, strong and courageous Kaela ✨“I have always had very painful periods ever since I first started getting them. My periods caused me debilitating pain that felt unmanageable and involved me taking much more advil and aleve than is recommended or safe, bowel issues, nausea and lack of appetite. I once fainted in the Vancouver aquarium when I was 12 because the pain was too much! Very embarrassing! Other symptoms I experience are fatigue, consistent bloating to lower abdomen, and pain during and after intercourse. I grew up seeing my mom struggle with endometriosis and her lacking enough information from doctors for many years, so we both sort of suffered together. She got her hysterectomy a few years ago⚘ I had many doctors that didn't have a lot of insight on this condition and usually I was told to take pain meds or birth control, which didn't help. I've been on a medication for almost 2 years that did provide a lot of relief and stopped my periods, however the past few months I've had pain and other symptoms return that are showing me that this pill may no longer be a good fit. I finally took myself seriously and got referred to an OB-GYN and am getting an assessment and ultrasound next week. I know many women go through this and it's terrible! I'm glad there is work being done to get more information and RELIEF! 💛💛💛 “ . . . #endowarrior #endometriosisawareness #endometriosis #runforendo # endo #chronicillness #chronicpain #chronicillnesswarrior #chronicpainwarrior #periodcramps #love #yyj #running #fitgirl #fitness #runner #runningmotivation #runningcommunity #runninglife
Sharing a bit of honesty on here this evening. Today has not been a good day for me. Over the past few days I've felt myself getting lower and today I went over the edge. I was at a place mentally and physically where I felt empty. I've been experiencing extreme fatigue and generally feeling very low mentally. But I'm now sitting on the other side of it. How? Because God is good and He does not leave us to fight these battles alone. He does not leave us in a place of darkness. I told God that I can't do this in my own and I need Him to do this for me. Chronic illness is often a terrifying and lonely experience. But God is still good and this is what I must hold on to, especially during lock down/social distancing. God is good and He gives us hope even in the darkness. The mental battles we face are sometimes the most frightening and challenging. Please, if you are in this position, reach out for help and lean into God to be your light in the darkness. I don't know how long this post will be up for, I feel very vulnerable sharing this side of fibromyalgia and how lock down is affecting me. But I'm sharing it in the hopes that anyone else struggling mentally will know that they are not alone.
O' Mary conceived without sin pray for us who have recourse to Thee. O' Mary conceived without sin pray for us who have recourse to Thee. ⚘📿 Hail Mary, Full of Grace, The Lord is with thee. Blessed art thou among women, and blessed is the fruit of thy womb, Jesus. Holy Mary, Mother of God, pray for us sinners now, and at the hour of our death. Amen.⚘⚘⚘ Glory be to the Father, to the Son and to the Holy Spirit. Amen. ⚘⚘⚘⚘⚘⚘⚘🕇 Our Lady of the Miraculous Medal pray for us. Amen. ⚘📿 #Avemaria #OurLadyoftheMiraculousmedal #Catholicism #MotherofGod #Jesus #Sinners #USA #Courage #Pentecost #Repentence #Pandemic #coronavirus #Hope #Faith #Joy #VirginMary #Mercy #Holytrinity #Mentalhealth #Christianity #Terminalillness #Chronicillness #Catholic #Praytherosary #Healing #prolife #ImmaculateHeartofMary #Fatima #OurLadyoftheRosary #Totustuus ⚘⚘⚘⚘⚘⚘⚘⚘⚘⚘⚘⚘⚘
We know we need to eliminate the inflammatory burden we put into our bodies, now let’s discuss the external. It’s just as important to an already over burdened body.
My fellow spoonies. . We may not be physically able to march in protests, but anti-racism work predated this crisis and will continue long after it has faded. There has been and will continue to be non-marching work to do. Some examples: ▪️Listen to and signal-boost black voices. ▪️Educate yourself and those in your circle. ▪️Donate money and supplies ▪️Call and email pertinent government officials and agencies ▪️Unabashedly confront racism whenever and wherever you encounter it even, perhaps especially, in yourself . The work of being an ally is more than crises and marches and protests, although those are wildly crucial. The ongoing, day-to-day work of anti-racism is not performative, it centers black people and must be willing to go unnoticed. . And that work can be done from your sickbed. So let’s get on it. . . . . . #blacklivesmatter #spoonie #chronicillness #georgefloyd #antiracism #blm #protests
Today's meditation was so powerful I had to share! Healing ourselves should not be the ultimate goal - because it means we consider ourselves broken. There is no perfection in life - no ultimate goal - only the journey. May we always be our at our happiest and healthiest and yet remember we are human and our best is good enough. That is the true path to our best and most complete version of ourself! Namaste! 🧘♀️💚 #iamenough #healing #meditation #goodbyelupus #goodbyeinflammation #goodbyelupusprotocol #smoothieshred #jefffoster #calmapp #dailymeditation #striveandthrive #letgo #nomoreperfectionism #chronicillness #healing #decutter #simplelifehappylife #simplify #gratitude #wellness #bewellwithbeverly
My surgery was a success and I’m happy with my results, but the was I was treated unacceptable. I am still baffled by how doctors and nurses can mistreat women. My pain and discomfort were not believed. More to come on this latter. For now I rest and focus on healing. #endometriosis #endostrong #endowarrior #chronicillness #chronicpain #spinalcordstimulator
One of the best items I've ever purchased has been my Far Infrared Sauna from Amazon. A crucial part of my health journey has involved reducing my toxic load/chemical burden through detoxification. Eating organic food, using safe household cleaning products, clean personal care products, rebounding exercises, dry brushing, detox baths and a far infrared sauna have been some of the methods I've employed. Infrared light has significant biological effects that benefit your body by: Activating anti-inflammatory processes Supporting weight loss Reducing blood pressure Relieving unwanted pain Releasing toxins Boosting immune system function Purifying skin Promoting wound healing Increasing blood flow Supporting cell regeneration Increases muscle and joint mobility Improving athletic performance Decreasing stress Promoting relaxation Fighting cognitive decline Ever try a Far Infrared Sauna? if so what's your experience been like ? #thebetterbeautygal #moldbiotoxinillness #chronicinflammatoryresponsesyndrome #mastcellactivationdisorder #mthfr #heavymetaldetox #molddetox #betterbeautyforall #beautycounter #cleanliving #decreaseyourtoxicload #farinfraredtherapy #infraredsauna #relaxsauna #lymedontkillmyvibe #lyme #lymetreatment #lymehealing #bartonella #epsomsaltbath #chroniclymeisreal #chroniclyme #molddetox #chronicillness #lymewarrior #healinglyme #lymedisease #mylymediseasejourney
• TRAUMA •⠀ ⠀ That feels like such a loaded word these days. The whole world is experiencing trauma right now. The US especially, is experiencing unprecedented trauma. ⠀ ⠀ As chronic illness patients everything going on is just piled on top of everything we already have to deal with. Just because we are in the middle of a pandemic doesn’t mean that our illnesses pause. Just because there is rioting and destruction in our streets doesn’t mean that our pain or fatigue feels any less. ⠀ ⠀ Physical, mental, emotional, spiritual trauma... Each as significant as the other. Each as difficult. If you are feeling it all pile up right now, you are not alone. Things are hard right now, there is no sugar coating it. Not knowing if and when things will be okay is tough. ⠀ ⠀ Keep your head up. Find a way to inject positivity into every day. Turn off the news, take a break from social media and just remember that regardless of the chaos of today, the sun will rise again tomorrow and there is always something to smile about. ⠀ ⠀ Take a breath of fresh air and know that someday the world will heal, and so will you. ⠀ ⠀ #ulcerativecolitis #uc #ibd #chronicillness #invisibleillness #crohnsdisease #crohns #autoimmune #ileostomy #nocolonstillrollin #spoonie #chronicallyill #youtube #warrior #invisible #visible #chronic #ibdwarrior #awareness #brainfog #ostomy #jpouch #barbiebutt #bodypositive #selflove #worldibdday #ostomyawareness #ootd #outfitinspo
It's World MS Day! When I first decided to paint my MRI scans, my goal was to provide "evidence" of my invisible illness to the rest of the world. However, the more I painted, the more I realized I was also proving something to myself. It can be hard to not listen to all of the skeptical "but you look so healthy" and "you seemed fine yesterday" comments. It was especially difficult when I was 15 and looked "too young" to be sick. --- MS is unpredictable, and I often feel terrible if I can't meet people's expectations. I just have to remind myself that even though others can't see it physically, I have an autoimmune disease, and I need to be honest and firm about it. MS symptoms are real, and the damage is real, too - it's right there in the scans. --- To everyone struggling with a similar problem, don't feel afraid to stand up for yourself! The more we spread awareness, the more understanding the world will be. . . . . . #ms #multiplesclerosis #msconnections #worldmsday #livingwithms #autoimmunedisease #thisisms #mswarrior #mnartist #minnesotaartist #msstrong #chronicillness #invisibleillness #pediatricms #halfasian #halfchinese #msawareness #brainlesions #mriscan #painter #gouache #brainpainting #worldmsday2020 #msactivist #artist #preexistingconditions #myms #smile
I am the one in ten with #endometriosis - but there are so many more of us out there fighting an invisible battle every day! Endometriosis means struggling to get recognised and taken seriously, it’s years of your lifetime doubting yourself and your symptoms over and over again, it’s having to explain and justify yourself constantly and so much more. But it’s also learning acceptance, making new friends who understand, getting to really know yourself and your body, growing with what life’s throwing your way and learning to make the best of it! That’s why I do what I do with this account, my German blog and Youtube-Channel - I want to raise awareness for this chronic illness affecting so many and help others with my experiences as much as I can. So thank you for supporting me on my way and sticking around!🎗🥰 PS: Get yourself friends like my lovely @vaynie who lettered this sign and sent it to me as a surprise!💛 . . . . . #endometriose #adenomyose #adenomyosis #adenomyosisawareness #chronicillness #1in10 #endosister #endoawareness #endometriosisawareness #endosisters #endowarrior #endometriosissucks #inderregelbinichstark #endometriosissupport #endometriosisfighter #endobeauty #endometrioseka ̈mpferinnen #womensupportingwomen #endometriosiswarrior #endometriosissurgery #endometriosisjourney #endogang #lebenmitendometriose #endometriosiscommunity #thisisendometriosis #endometriosisisreal
Today is filled with gratitude 💜 mainly because a few weeks ago, doing a short dog walk was HARD yet today, I managed to go on a 4 hour walk and ENJOY it There’s so secret recipe as to how I managed it. It wasn’t because I’d been training or eating right or sleeping better. The truth is, my chronic illness let me today Spoonie life means I’m grateful for the days when I CAN. I’m taking full advantage of my body been on my side for a change and loving it! Although I can confirm that my knees and ankles are killing me now but I don’t care because I had a brilliant day! Also, these @newbalance trainers have memory foam in them and made the walk a lot more comfy. I dread to think how I’d feel if I had used my normal ones 😅 I soak up these good days so much and they help me through the bad ones 💜 👉🏼 what are you grateful for this week? • • • • • • #ChronicIllness #Spoonie #InvisibleIllness #Disability #SpoonieLife #Disabled #DisabilityAwareness #ChronicIllnessWarrior #TiredGirl #InvisibleDisability #ChronicLife #InvisibleIllnessAwareness #ChronicIllnessAwareness #AutoimmuneDisease #Fatigue #ChronicFatigue #BrainFog #SickAndTired #ChronicallyFabulous #SickAndTiredOfBeingSickAndTired #ButYouDontLookSick #nocolonstillrollin #bodypositivity #womenshealth #allbodiesaregoodbodies #girlssupportinggirls #noteverydisabilityisvisable #BeTheChange #spooniestrong #chronicallylivinglife
When life gives you lemons... cut them in half and work it🙋🏻♀️ ✨ #allbodiesaregoodbodies get out and get your tan on guys and gals. ✨ What is everyone’s plans for this fine Saturday? ✨ Bikini: @boohoo - we should make it #allbodiesareboohoobodies 🙋🏻♀️ ✨ #creativegalgang #bikini #crohnswithme #saturday #tan #sunshine #crohnsdisease #crohnsandcolitisuk #ulcerativecolitis #crohnsgirl #crohnswarrior #crohnsfighter #ibd #invisibleillness #autoimmunedisease #chronicillness #chronicpain #healthblogger #lifestyleblogger #bodypositive #bodyconfidance #allbodiesaregoodbodies #ibdsuperheroes #garden #stayhome #staysafe #zebedeemodelsearch
Friday night I ended up in the ER with severe pain and bleeding, I was then admitted after having an ovarian cyst rupture. I’m now home with some seriously good pain meds and am very appreciative for the messages and calls of love I’ve received. Just trying to raise some awareness of endometriosis and what it does to us as women. . . #endometriosisawareness #endometriosis #endometriosiswarrior 💛 #chronicillness #chronicpain #awareness #endometriosisaustralia
✨ Today’s divine reminders ✨ No matter what you encounter in your day, remember that you are still the magnificent being that was created unique. You are created for a purpose of impact. Your heart needs to be shared with this world. Especially right now. The world needs your love, your laughter, your perspective. The world needs your healing. No matter what you encounter in your day, remember that you are strong enough to face it, to feel it, and to overcome it. ✨You are a warrior spirit that has so much fight within you to move mountains and make your dreams come true. You are not limited to how you are feeling in this moment, whether it be grief, shock, sadness, disappointment, or discouragement. Learning to give yourself grace through every hard lesson learned is so vital to your emotional, mental, and physical wellbeing. ➡️You will make it through every single one of your terrible days. Why? Because you have the ability to courageously conquer whatever this life throws your way. ➡️Remember this when something unexpected shifts your thoughts.
This morning I woke up and I forgot how sick I am. I woke up with a warm, snuggly puppy in my arms and we just laid together for the longest time. I stayed away from my phone - no games, no social media, I just listened to calming music and held my dog. It was so peaceful. Then I remembered. I remembered I have to take one pill asap if i wanted to eat in the next 30 minutes. I remembered to check my blood sugar and correct if needed. I remembered I need to use my steroid inhaler before I brush my teeth because I have to rinse out the chemicals. I remembered I have to change my site today. I remembered that I have my ultrasound on Tuesday for the cyst that they found. I remembered how my body still aches from putting together my shower chair, and then taking a shower. But I also remembered something else. I remembered I am strong enough to handle this. This is absolutely NOT what I imagined my life would be like at 23 and freshly out of college, working on her masters and living in a new state. But I can do this. I will have moments where I feel like I can’t go on. I will breakdown. I will scream and cry and curse at my body. But I will stand back up, just off my shirt and charge on. I won’t let my determination to live, and not just survive dwindle. There has to be a light at the end of this tunnel that opens up to the next chapter of my life. And I want to be prepared to make it as beautiful as possible ✨